The England Rare Diseases Action Plan, led by the Department of Health and Social Care, addresses diagnosis, treatment, and support for patients with rare and neglected diseases including haemophilia, Hansen's Disease, and Alpha-1 Antitrypsin Deficiency. The plan focuses on improving specialist access, research funding allocation, evidence availability, and equity across paediatric and adult services. The policy is active with ongoing parliamentary scrutiny of implementation and funding commitments.
In response to: England Rare Diseases Action Plan 2026
In response to: England Rare Diseases Action Plan 2026
In response to: England Rare Diseases Action Plan 2026
The fifth action plan shows how the Department of Health and Social Care and delivery partners are implementing the UK Rare Diseases Framework in England.
In response to: England Rare Diseases Action Plan 2025
In response to: England Rare Diseases Action Plan 2025
In response to: England Rare Diseases Action Plan 2025
The fourth action plan setting out how the Department of Health and Social Care and delivery partners will implement the UK Rare Diseases Framework in England.
In response to: England Rare Diseases Action Plan 2024
In response to: England Rare Diseases Action Plan 2024
The third action plan setting out how the Department of Health and Social Care and delivery partners will implement the UK Rare Diseases Framework in England.
In response to: England Rare Diseases Action Plan 2023
In response to: England Rare Diseases Action Plan 2023
The second action plan setting out how the Department of Health and Social Care and delivery partners will implement the UK Rare Diseases Framework in England.
In response to: England Rare Diseases Action Plan 2022
The first action plan setting out how the Department of Health and Social Care and delivery partners will implement the UK Rare Diseases Framework in England.
In response to: UK Rare Diseases Framework
A framework setting out a coherent, national vision on how the UK will improve the lives of those living with rare diseases.
A summary of the strategy's progress and actions for the government and partner organisations for 2020.
A summary of the strategy's progress and actions for the government and partner organisations over the next year.
Sets out the actions DHSC and partner organisations will take to implement the commitments under the UK strategy for rare diseases.